Young Parkes girl Lilly Wyburn has been fighting a long and difficult battle with leukaemia since she was diagnosed just before her second birthday.
Eight-year-old Lilly, daughter of Jodie and Kane Wyburn, has spent much of the last six years in hospital fighting for her life.
Early in May, Lilly’s health took a turn for the worst when both her lungs collapsed after an operation to insert a feeding tube to help her gain weight for an upcoming lung transplant.
She spent 9 weeks in the Paediatric Intensive Care Unit at Westmead Children's Hospital.
Due to the severity of her illness, Lilly's her lungs are seriously and permanently damaged.
She is on 24/7 oxygen and relies on a wheelchair to get around and carry the heavy canisters that help her.
Jodie said Lilly’s condition had improved enough for her to be discharged from hospital two weeks ago.
“She’s good. She’s feeling a lot better and is glad to be home with her brother Logan,” she said.
“We go back to Sydney on Monday for a couple of days, then it’s home again until we go to Melbourne on August 6 for Lilly to be assessed for a double lung transplant.
“Once approved she goes on the list and we wait. It can take up to two years, but the average time is six months.”
Lilly's aunt, Lucy Daniel, has set up a ‘Help Lilly Breathe’ GoFundMe page to support Lilly and her family, both financially and emotionally, during this unfortunate time.
You can follow Lilly’s journey on the Likes For Lilly Facebook page.